BACK THE FUCK OFF. Okay, so sorry, this is really not directed at any one person…I know people want to help; But if I hear one more time how “all this auto-immune stuff” is caused by what I fed my kids, I might lose it. I don’t really feel like venting right now. If you have followed me at all, you know that I do that quite often :). So for now, I am going to stand on the proverbial soap box:
When you hear that someone has had a child in their life diagnosed with a chronic, or terminal disease for that matter…DON”T SPEAK. Give them a hug, cry with them, tell them how sorry you are. But don’t, DO NOT, try to find something comforting to say. There is nothing to say. Accept it. move on.It is okay to not say a blinking thing.
As most of you know, my 6-year-old was recently diagnosed with Celiac Disease. Yes, the food is widely available, yes, it is not as bad as diabetes (diabetes wasn’t as bad as cancer). I get it. But, please, for the love of all that is Holy; DO NOT TELL THE PARENTS ABOUT THE LINK BETWEEN PROCESSED FOODS AND CELIAC, or celiac and other auto-immune disorders. They know. trust me, they did more reading and research in the first few days after diagnosis than you have done UNLESS you are living it.
Yes, I fed my kids Kraft mac and cheese from a box and they eat cocoa puffs. I admit it. BUT, they were also exclusively breast-fed for at least 18 months each, and I made my own baby food. My husband and I made the choice for me to be a stay at home mom. He has a good job at a decent company, but we cannot afford to shop at Trader Joes and Whole Foods or even the organic section at Shaw’s. So yes, I chose a college fund over Annie’s organic mac and cheese. So there it is. Parents of chronically ill kids have enough guilt. They don’t need to be made to feel like it is their fault their kids have auto-immune diseases. They already think that from time to time. Trust me.
So, what is my point? My point is, we don’t know what causes all of this crap, if we knew there would be a cure. Just support your family and friends, let the smart pHd’s who are toiling in the labs worry about who or what caused diabetes, Celiac, autism, Addison’s, vitiligo, etc.
So if you have tried to help someone by stating something you read ( I have) It’s okay. Don’t feel bad, I am not angry at anyone. Just know that me and all the other Type 1 and Celiac parents in the world have the right to just say BACK THE FUCK OFF, just as I would expect you to if I told you you caused your child’s lisp becuase you ate raw sushi while you were trying to get pregnant, or whatever.
Okay, I am stepping down from the soap box and over to the fridge for a nice cold beer. (oh ya, did I mention I drink beer while I wait for my kids bus??)
Stay tuned for my next vent…a rendition of Cee lo Green’s “forget you” ….